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Monday, February 11, 2013

Meetings, Meetings, and more Meetings...

Today wasn't as great as we were hoping, as evidenced by the fact that we are still in the hospital.  And after a minor meltdown on my part, we finally have a new plan.
Carter's EEG is showing a lot of seizure activity which in and of itself is worrisome, but the other problem we are having is that between seizures his brain activity is still abnormal.  We hope that the same medication that will control his seizures will control the other brain activity but we aren't sure...and we have to control the seizures first!  So here we wait, watching out boy and trying new medications.  The last 12 hours he's been REALLY out of it, only having brief moments of lucidity.  Thankfully that medication is wearing off and hopefully after a good night's sleep (and the new medication we'll start tonight) he will be a little more awake and vibrant tomorrow.
But we spent the day talking with lots of doctors about all of our options.  Since he doesn't fit in any box, and he isn't responding to "standard" protocols we are having to think outside the box and come up with solutions on our own.  Where's Dr. House when you need him?
But after meeting with pediatricians, hospital neurologists, radiologists, clinical neurologists, and pharmacists we have something new to try and hope to at least get a clue what direction to go in. It means we will be here at least 3 more days, but we hope and pray to be home for Valentine's day.  Keep us in your prayers and thanks for the love, concern and service we have received.  We are so indebted we could never repay you all.  Thanks!

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