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Thursday, May 9, 2013

Crazy May

Its been a while because May around here is like Christmas for most people.  Its the plethora of graduations, recitals, field day, dance festival, etc that happen as school winds down.  Add to it the array of birthdays and anniversaries in our family and its busy, busy, busy!
Congratulations to my big brother, Mike and his wife Mindy on the birth of their 4th child, little Benjamin David! Born May 8th at 4:26pm
Next, for those of you wondering how Carter is doing here's the latest.   After some good weeks we lost any semblance of seizure control a few weeks ago, and not just the drop attacks but grand mal and myoclonic seizures erupting every few days.  After speaking with the doctor we were resigning ourselves to starting the ketogenic diet when the doctor suggested there was one more pharmaceutical option: Onfi.  A new medication recently approved by the FDA specifically for atonic (drop attacks) seizures.  We decided it was our last chance to avoid the upheaval  of the keto diet so after talking to the pharmacies (its a new drug, remember?) and the insurance we were able to get Carter started on it.  After 1 week he was completely seizure free!  We've had false starts like this before but we are encouraged.  We've had one seizure in 8 days!  Thanks for all the help and prayers, they are definately paying off.