A very long day with the docs

Today was a very long day at PCMC.  Mikayla had an EMG which is a needle test that gauges her nerves and muscles.  She was a trooper! They didn't have to sedate her and then she just looked at her book and didn't make a sound as they were sticking electrodes and needles into her muscles-A-MAZE-ING!  The doctor was able to get a little more information and they have scheduled a muscle biopsy for  a couple of weeks from now.  We have hope that his new neuro-muscular specialist will be able to give us answers where so many have failed before, although we mostly want to make sure that there isn't anything degenerating going on.
Carter had his follow up with his neurologist who tweaked his medication and is still hopeful that we can control the seizures with medication.  It was working so nicely for almost a week there! (dang that stomach flu that set us back 2 weeks!)  He's still having several little seizures/drop attacks an hour and they get worse when he's tired but he loves wearing his helmet which helps set mom's mind at ease and mostly we just bribe him to stay on the couch and watch tv so he doesn't get hurt...  The doctor has a few ideas for a diagnosis but its too early to tell and I don't want to name them and have you all google them and get scared so you'll just have to wait to find out.  
For now know that we love you and appreciate your concern.